Tuesday, May 20, 2008

Mast Cell Disorders on CaringBridge

As some of you may know, my wife suffers from a rare illness (Idiopathic Anaphylaxis). For some time, she has made herself available to people newly diagnosed with IA (a lot easier than the mouthful of the full name) or other mast cell related disorders (including mastocytosis). Anyway, she just went live with her own site to provide information and share ideas. Here's her welcome message:
Well, I have joined the world in creating a webpage/blog, although mine is designed as an info page for people with my disease. You probably aren’t interested in the info on it (pretty boring for you healthy people!), but if you ever wanted to know what I had, well, here’s your chance! I actually get contacted a lot by people across the nation who are looking for info on mast cell diseases. I am listed somewhere as an information contact person, so they find me and email or call me frequently. I decided to create this page so that I didn’t have to keep emailing out the same stuff over and over to various people.
To access her page directly, please visit https://www.caringbridge.org/visit/mastcelldisorder.


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